Worldwide most older people with complex health conditions, like dementia, live at home with support from family members and/or municipal services. Research on home care services and life at home for people with dementia is growing and draws on many academic fields of study, including Science and Technology Studies (STS), philosophy of care ethics, nursing, phenomenology, and health policy.
To date, research in this area has not used a citizenship lens, but it is relevant as individuals and families, are at risk of micro injustices within the home (as well as outside). Consider, for example, how someone may be confined to their home because they lack the resources to go out by themselves, or because others do not understand the struggles, they face.
The aim of this seminar is to share the latest work by VID researchers and our collaborators based at the German Centre for Neurodegenerative Diseases (DZNE) related to improving services and life at home for people with dementia. We will explore and discuss ideas associated with health citizenship, such as creating the conditions for people to live a good life at home, understanding subjective experiences, and sharing the responsibilities of care.