About the project
This is a study within the thematics: professional practice and challenging relations. Focus is on terms for self-determination and citizenship for persons with profound intellectual disabilities, more specific on what this demands of professionals relational competence.
To be self-determined and participate in daily-life and services are based on fundamental human rights claiming that all people are equal and all people are entitled of freedom. This also includes the right to be self-determined. Even though this is a goal stated in different policydocument regulating services for persons with disabilities, practice shows that it is challenging to achieve. This can be due to serviceproviders low expectations and knowledge about possibilities for self-determination for this group, and the assymmetrical and wordless character of the relation. Self-determination must be realised in relations, and the professional posesses power that can facilitate or hinder services congruent with the right to be self-determined.
The overarching question to be studied; what characterizes relations between persons with profound learning disability and professionals in health- and welfareservices that promotes self-determination and citizenship? An ethnographic approach will be applied, and the aim is to get close to the person with profound learning disability and important professionals in different parts of the persons daily-life. Using participatory observation, interviewing professionals, and dialoguemeetings with significant others the goal is to capture the thought and perspectives of the professionals, and get close to the voice of the person in regard. This latter will be done both through the wordless stories that unfolds in relations with the professionals and through significant others stories and understandings of the person in question.
Cand. Ed: candidata educationes